Readers of this blog know that I pledged to ride, run, swim and paddle 8,000 km in under a year in support of cancer research, prevention and care at the Alberta Cancer Foundation.
I used to run a lot when I was younger…and running 3-4 times a week kept me in touch with not only the physical and mental health benefits of running, but also the well of creativity that one can access when pushing hard physically…the turning off of the chattering mind and turning on of the benefits of flow.
Frankly I made the pledge to cover 8,000 km on a bit of a whim…I was reading about the 40th Anniversary of the Terry Fox Marathon of Hope just as it was announced that my annual Ride to Conquer Cancer had been cancelled. As a supporter of cancer research I wanted to do something and the Give’r Project was born.
Stuck inside on a trainer for the most part I had started to flag last week…feeling isolated and wondering if I had bitten off more than I could chew. But now, 6 weeks and 950 km in, I feel like I have crested a big hill. I feel stronger all of a sudden, and the riding is less drudgery and more inspiration. I have tapped that well and where there was boredom, isolation and anxiety I am now experiencing expansiveness, wellness and creativity.
I heard someone say today, related to the pandemic, “…tough times don’t last, but tough people do.”
I’m feeling it. If you are having a hard time getting moving, maybe you should just Give’r.
I had the great good fortune to attend (virtually) the Alberta Cancer Foundation‘s Clinical Trials Day crowdcast yesterday from the Cross Cancer Institute. It was truly thrilling…and you can watch it here if you are interested. I watched Session 2 from the CCI.
Charismatic nerd and Rockstar in his own right Dr. John Mackey kicked off the session before heading off to the clinic, introducing Research Rockstar Dr. John Walker. I’d heard Dr. Walker speak on another occasion…introducing the story of how the CCI had initiated clinical trials of Combined Nivolumab and Ipilimumab or Monotherapy in Previously Untreated Melanoma. In 2010, before this novel immunotherapy combination had been discovered, the survival rate for late stage melanoma was less than 10%. Now the 5-year survival for Melanoma is over 50%. Dr. Walker was joined by Cam Lane that day…a patient whose life was saved by the clinical trial and who rode with us on Team Alberta Cancer Foundation.
Yesterday John introduced Chris Brochu…another patient who benefited from the trial and whose life was saved. Chris shared the story of how he had a melanoma removed in 2009 in BC and was treated with Chemotherapy for a recurrence in 2015. When the Chemotherapy proved ineffective he was out of options locally and given 4 weeks to live.
Luckily his doctors recommended that he join the clinical trial at the Cross Cancer Institute. Chris came to Edmonton, rented a house, and joined the immunotherapy clinical trial. At age 33 Chris’ life was saved.
This may be the most poignant modern demonstration of the power of cancer research and the private donors who fund it that I have ever heard.
Immunotherapy is exciting because it works by boosting the body’s natural defenses to fight cancer, rather than introducing a poison to try and kill it. Dr. Walker shared that Dr. Michael Chu is working to bring even more exciting clinical trials in cellular therapy to the Cross. Cellular therapies are manufactured by collecting a specific set of cells from the blood, modifying them to produce a more vigorous attack on a patient’s cancer cells, and then re-injecting them into the patient.
After the session I increased my fundraising target for my Give’r Project to $10,000…the cost to enroll one patient in a clinical trial. Better yet, every dollar we raise can be leveraged to receive 5 or more dollars from pharmaceutical companies and other granting agencies. Hope you’ll join me!
On April 12th, 2020, the 40th anniversary of Terry Fox’s Marathon of Hope, Team Giver and I will begin a commitment to cover 8,000 kms across Canada cycling, running, swimming and walking on Strava to fund raise for cancer research.
On April 9th we learned that the Enbridge Ride to Conquer Cancer is postponed until next year due to CoVid-19.
The Ride has been the single largest fundraiser annually in support of cancer research, clinical trials, prevention and care in Alberta for 11 years, and the need continues. I’ve spent the last couple days wondering what I can do to help.
One thing is certain…without the critical funding that the Ride and countless events like it provides lives will be lost. If you are able to, amid all this upheaval, and if you still want to support the work of the Alberta Cancer Foundation, please join Team Giver and fund raise alongside me for this cause that affects us all.
Whether through cancer research or clinical trials, the work that the ACF does here in Alberta benefits everyone around the world. If you want to create a Give’r Ride to support your local foundation where you are let’s do that too! Join Team Giver on Facebook hit me up and we’ll create a new fundraising page.
If you aren’t a rider, or a runner, but want to continue to support, please consider a donation through the Give’r Projecthere:
On October 11, 2020 I will celebrate 15 years as a cancer survivor. 2020 is our 14th straight year fundraising and riding so that others diagnosed with cancer might be saved the way I was. Along the way we’ve raised over $96,800 together, and our teams have now raised over $638,000. This is all because of your generosity, and your belief in the cause.
Team Give’r Across Canada
On April 12th, 2020, the 40th anniversary of Terry Fox’s Marathon of Hope, Team Give’r and I will begin a commitment to cover 8,000 km cycling, running, swimming and walking on Strava…in 365 days…all over Canada. Many of you will know that this was the planned distance of Terry’s cross-Canada odyssey beginning in 1980…cut short by lung cancer.
This will be a challenge in a number of ways…not least of which that I’ve personally never done anything like this before. The challenge is nothing beside the trials that Canadians facing cancer and their families go through every day. With your generosity, important breakthroughs will continue to be made in the pursuit of cures and treatments for cancer.
Toward a World Free from Cancer
As an advocate for the cancer community I’ve said countless times that our goal is “to see a world free from cancer in my lifetime”. I’m 52. From everything I have seen and heard I am convinced we are only 10 short years away from the reality of a world free from cancer…when the overwhelming majority of cases cancer will be curable.
I was diagnosed with testicular cancer on October of 2005…a diagnosis that only 40 years ago would have been a certain death sentence. Luckily there is more to my story. Because of private funding for cancer research testicular cancer is now curable in over 80% of cases.
After successful surgery and a clean CT scan we opted for regular surveillance – blood tests, x-rays and scans – in the hope of avoiding further treatment. Christmas of 2006 brought the unhappy news of enlarged lymph nodes in my abdomen, confirming that the cancer had spread. I was prescribed a 9-week course of chemotherapy after a panel of experts reviewed the results of 2 scans. The treatment was life threatening in itself, with frightening side effects, but I emerged in April battered but with a clean bill of health. Victory.
Having been through diagnosis, surgery, surveillance and chemotherapy I can say from experience how extraordinary our cancer control system is in Canada. My survival is a testament to how important ongoing cancer research is. Cancer research quite literally saved my life.
If you want to join Team Give’r and support either the ACF or your own local provincial foundation, like Team Giver on Facebook and hit me up. Our goal is for Team Give’r to spread wherever it can until we finally see a World Free From Cancer.
Follow our progress on Instagram: @Andrew_Gregory and on Twitter: @Andrew_Gregory @teamgiver
Now over 50, I am beginning to notice that 3 days on the board is a worthwhile benchmark.
This past weekend myself and 5 old friends got together for our high-school/University annual at Whistler. I pre-paid for 3 days on the mountain (it ain’t $60 for a lift ticket anymore) and was ecstatic that the body held up throughout the hard riding and late nights.
You want to be able to charge for 3 days in a row when you get the chance…whether surfing, cycling, hiking, paddling…whatever.
The official sod turning on Westmount Presbyterian Church’s new multi-family housing development happened June 17, 2016. Many of their neighbours, myself included, were there to participate. To use a term coined by Mayor Iveson, North Glenora has said “YIMBY” to a mixed income housing project that I am convinced has a place in each and every community in Edmonton.
When the Westmount Presbyterian Church (WPC) – an anchor property in our neighbourhood directly across the street from Coronation School – announced its plans to develop the land into affordable housing the community reacted predictably.
North Glenora is a very tight-knit, mature neighbourhood where people watch each others children, volunteer for the Community League (NGCL) and share news over the fence. In other words, we’re no different than any of Edmonton’s wonderful communities.
In the early vacuum of information, fear of the unknown came to the surface. Concerns over increased density, impact on property values and increases in crime were imagined, shared and repeated. “There goes the neighbourhood…”
It took dozens of meetings and hundreds of hours of focused effort on both sides to get to “YIMBY”. We wanted to tell our story in case it would be useful for other communities and developers. What follows is my attempt to summarize how we got to YIMBY and what we learned along the way.
Establish Shared Objectives
In our first meeting with the WPC and Intermet we established that our objective was to have a best-in-class, inclusive community engagement process in order to deliver the best possible outcome for all parties. We agreed that it would take time, but that WPC would commit to listening to the community and incorporating their feedback into the design[i].
I believe that everything good that followed hinged on this first understanding…and that enormous credit is due to WPC and Intermet for having the courage to engage in this process with the community. Having this shared understanding in place up front gave us a touchstone when discussions got heated or when shortcuts began to look appealing.
It is far better to ask the developer up front if they intend to involve community feedback in a sincere way, than to merrily engage in dialogue until they satisfy the requirements of their development application and just do what they always intended. You would be wise to agree on a mutually understood definition for community engagement as well.
Very soon after WPC announced their plan, the NGCL Executive met and agreed that the Planning Committee would represent the community in communications with the developer. We met as a committee to discuss what we wanted to achieve, and set our first meeting with the WPC as soon as possible.
In that first meeting we came prepared to listen with an exhaustive list of preliminary questions that we felt would allow us to report the initial development plan knowledgeably to the community. Questions included:
What is your plan for the site?
What kind of variances will you look for?
When do you hope to submit the development plan?
When do you hope to break ground?
Can you provide a preliminary timeline for the project?
It’s amazing what you can learn when you ask questions and are prepared to listen. We also committed to regular, open communication in order to establish and maintain mutual understanding among the parties. Out of this came a rough timeline for the engagement, including different hurdles and milestones for soliciting direct community feedback.
It seems that the Achilles heel of most re-development plans in the city is that too many decisions are made too early without involving the community…committing the developer to a plan before engagement has taken place and derailing authentic dialogue before it can happen.
A great question to ask in your first meeting is “Are you willing to listen to community input and feedback on the plan, and incorporate it into your design, within reason?” If the developer is unable to say “yes” with sincerity, then you don’t really have an authentic community engagement ahead of you. If this is the case, you might even decide to withdraw as a committee from the engagement. You don’t want to find yourself unwittingly coopted into an inauthentic engagement process on behalf of the neighbourhood.
As a committee we would get together to prepare our approach to each meeting. We selected a spokesperson who would be responsible for driving the agenda. With several parties at the table and so many competing agendas this is important in order to ensure you achieve the outcome everyone needs from each meeting.
We took careful notes of everything that was said and agreed to in the meetings, and followed up by sending detailed minutes to all participants so that they could review them, make any comments or changes, and then approve. Once approved, these minutes were published to the North Glenora Website[ii] for public viewing and posterity. We updated the NGCL Executive and solicited feedback when necessary to ensure that we were on the right track, and provided regular progress updates to our community email list, and in our monthly paper newsletter. Each of these updates ended with “If you have any questions or comments please contact us at email@example.com”.
In this way we behaved like a professional Board of Directors…and with good reason. In an environment where emotions were high and opinions strongly held, we wanted to ensure that the committee could not be seen as having a secret agenda in the discussions with the developer. At all times we tried to represent what we believed to be in the best interest of the community, and made public everything we learned or did as it happened for review and comment by the community.
Neutrality, Diversity & Inclusion
Another core principle that served the Committee was that we would only speak on behalf of what we believed to be the best interest of the community…that our own individual concerns were valid only as single voices within the chorus. In order to speak confidently on behalf of the community, we adopted the “North Glenora Community Development Plan”, established in 1998, as a sort of constitution for the proceedings and asked Intermet to do the same. At regular intervals we solicited direct feedback on specific issues through on-line and paper surveys delivered door-to-door to inform the developer. Finally we were sure to schedule periodic town hall meetings where individuals could hear for themselves how the plan was progressing. Armed with these 3 tools we felt confident we were serving the community’s interest to a reasonable standard.
One of the strengths of our committee was that it contained a diversity of voices from the community – neutral, supportive and opposed. We also benefited from a strong network of non-committee community elders that we could bounce ideas off informally to test our assumptions about the best path.
We reminded ourselves often that every resident should be encouraged to participate in the process at every stage…that all positions were valid no matter how extreme. Anyone that wanted to could join the committee and be involved. We were dealing with a planned development that would affect homes that in some cases had been in a family for 2 generations. Everyone had a right to be heard[iii].
Many of us might wish to comfortably go about our day without having to have difficult conversations about affordable housing in our neighbourhood…let alone be tasked with representing our community’s diverse and sometimes incendiary opinions on the matter. As committee members we had to do just that.
To address the fear of affordable housing we decided to take it head on…unblinking and in as emotionless a way as possible. We realised that these concerns were valid and that the community deserved the right to ask them…and to hear the developer’s answers.
The committee found a series of questions on-line from a similar development, and polled the NGCL Board and the community in order to get an exhaustive list of questions and concerns about the impact of the potential development. We then boiled these down to 13 big questions. Two of the more controversial ones were:
The injection of low-income housing into a community can increase crime under some conditions. Have you given thought to this and can you provide research and evidence that supports why the proposed development will not have this affect in North Glenora?
The injection of low-income housing into a community can reduce property values under some conditions. Have you given thought to this and can you provide research and evidence that supports why the proposed development will not have this affect in North Glenora?
As you can imagine, some understandable outrage was felt and expressed by WPC. The implication that their inspiring vision of providing affordable housing for new Canadians might result in increased crime and lowered property values was taken as an insult…yet I believe we had to put each-other through this uncomfortable exercise so as not to let the concerns fester.
WPC and their partners accepted the list and took due time to answer each one in full in writing…a document that was then presented to the Committee for review and understanding before we shared it with the community.
As members of the committee we took the role of devil’s advocate and felt we had to be satisfied that the WPC had answered the concerns in as clear a way as possible to allow neighbours to make an informed decision on the proposal.
At the end of the day, the property owner is the property owner. We respected WPC’s right to execute their vision for the property while asserting our rights as neighbours to be consulted on something that would directly affect us.
Our assertion from the beginning was that by involving us in the process they stood to gain not only our support as a community, but also a better final design to serve their vision – one that would be welcomed and embraced by the neighbourhood.
Leaps of Faith
In retrospect there were 2 leaps of faith required of the parties. We asked WPC and their partners to take a leap up-front to involve the community in their plans…risking delays, confrontation and hundreds of man-hours. Once the engagement was complete and the development plan submitted North Glenora had to take a leap…to trust that the developer would deliver on their promises.
Remember that North Glenora’s Planning Committee is made up of volunteers…volunteers like you with busy lives, schedules to keep and kids to get to soccer. Representatives from the WPC had a vision they wanted to bring to fruition, and in a sense we stood in the way of it. Despite the potential for conflict, I’m very proud of what we were able to accomplish together.
Our Committee felt that it’s job was to ensure that a robust engagement process was conducted, that the community would have a chance to be heard and that the developer would be encouraged to incorporate their feedback into the design. Once that was complete it would be out of our hands…the responsibility would rest with individual neighbours to attend the hearing at City Hall and exercise their right to speak for or against the development in an informed way.
Fruits of our Labour
On September 28, 2015 the Westmount Presbyterian Church invited the community to one last Open House to hear the final development plans for the site. Like all previous meetings this one was very well attended, and was conducted in an atmosphere of interest and general support. Peter Amerongen from Habitat Studio described all of the different ways that resident input had been incorporated into the materials and design of the building. He shared that it will be Canada’s first multi-family net-zero emissions housing project. Cameron Macdonald of Right at Home Society shared that they would pursue a mixed-income model and described how the new drive aisle had been redesigned in order to address safety concerns. They both went on to answer every question raised by the community…well prepared and confident that they understood our perspective.
Perhaps most importantly, they ended by saying that if there was ever any unanticipated issue that needed to be addressed, that they would commit to taking it head on in consultation with their neighbours.
On October 19, 2015 the public hearing for the development application was held at City Hall. Two residents stood up to speak in favour. None opposed. Mayor Don Iveson congratulated the developers and North Glenora on a successful community engagement.
At the sod-turning ceremony our Community League President was there to hand a home-made apple pie to Cam. Members of the Church team and the NGCL Planning Committee had a chance to reflect as well. We agreed that our shared understanding was hard fought, but, as in life, things that are worthwhile are rarely easy.
In the final analysis, our objective to deliver a robust, sincere engagement was met. We were successful because diverse groups were involved and we checked in regularly to confirm that we were still on the right track. You’ll have to bear this in mind when you tackle your own community engagement process.
Good luck getting to YIMBY in your own community. We’d be happy to have you over for Pub Night at the community hall if you wanted to chat about it.
I’ve necessarily kept this as brief and narrative as possible, though my NGCL Planning Committee folder is 2 inches thick now. In all that condensing, I hope it was clear that this could not have been achieved without the openness and generosity of:
The Westmount Presbyterian Church and its congregation; Annabelle Wallace and Les Young
Right at Home Housing Society; Cam Macdonald
Habitat Studio; Peter Amerongen
Edmonton Mennonite Centre for Newcomers; Erick Ambtman
The Communitas Group; Lynn Hanley
Architects of our NG Community Development Plan; the NGCL Planning Committee (1998); Tim Brockelsby, Don Eastcott, Joe Lennon, Bill MacDonald, Cole Pederson, and Fiona Salkie
North Glenora Planning Committee; David, Suzanne, Jason, Bruce, Joanne, Alex, Chet and Jim
Other community leaders who were always there for reference; chiefly Michelle, Ryan, and Rhonda
Edmonton Federation of Communities Leagues; Bev Zubot and Mark Nicoll
Scott McKeen, Ward 6 City Councillor, who asked not to be given any credit
This was written in the hope that our experience might help Community Leagues as they prepare to deal with new developments in their neighbourhoods…but I hope the account helps developers understand the other side as well.
It is certain that you could ask a dozen people involved with this engagement and they would all have different stories to tell. I was a member and then Chair of the Planning and Transportation Committee for North Glenora during the engagement. This reflects my own experience leading the project. Opinions are my own.
[i] We used the “Engagement Continuum” shared by Tamarack at http://tamarackcommunity.ca/g3s134.html as a tool to establish a mutually understood definition of community engagement and what it would mean to us. The highest level of engagement we could aspire to, and reasonably execute on, was “INVOLVE”. I believe we got there.
[ii] You can also see details of our community engagement process with the Metis Capital Housing Corporation (MCHC) at the North Glenora website if you are interested. The MCHC had proposed re-developing the Stan Daniels Centre, a senior’s home, into a family re-unification centre.
[iii] One of our early exercises was to invite committee and community members together to build a Stakeholder Map. This exercise was invaluable in trying to understand the diversity of interests in your community. We invited an experienced community member to facilitate. This is a good resource but there are others: http://stakeholdermap.com/
On October 11, 2015 I enjoyed my 10th anniversary of being diagnosed with cancer. On that day 10 years ago cancer chose me. This is an appeal that you join me and thousands of Canadians in choosing “conquering cancer’ as a mission…that you join us in pursuing a cancer-free future through the Enbridge Ride to Conquer Cancer, Presented by EVRAZ.
Why Choose Cancer?
1 in 4 Canadians are expected to die from cancer.
Cancer is the leading cause of premature death in Canada.
40% of Canadian males and nearly 45% of Canadian females will develop some form of the disease in their lifetimes.
One of my close friends lost his young wife to breast cancer after a long battle. The mother of a girl that we met at our daughter’s class lost her brother at a young age to testicular cancer.
We all know cancer survivors. I have a close friend who is thriving after surviving breast cancer. Among my circle of guy friends four of us have had testicular cancer. We are all doing great despite being diagnosed with diseases that were sure killers mere decades ago.
It must be said that these survivals also represent spouses, children, parents who still have loved ones in their lives. Each year, over 1,000,000 years of life are lost in Canada alone as a result of cancer deaths.
There is no denying that this is a disease that affects all of us.
Breakthroughs are being made every day in the race to find cures for this deadly disease. Simply put, our financial support of this cause goes directly to impacting outcomes for our neighbours, our colleagues, our family, ourselves.
As a 40-something male who has survived cancer once I am also keenly aware that the bulk of cancers that kill men still lurk in my future. Make no mistake…investing in effective cancer research is in our own personal best interest.
So what’s a person to do to? Quit smoking, eat well, exercise, manage stress and give back by funding the world-class prevention, screening, research and enhanced cancer funded by the Alberta Cancer Foundation.
Once my treatments began, I quickly realised that if I survived I would owe my life to visionary cancer researchers and breakthroughs funded by everyday people who cared. Back in March, 2007 I emerged after 3 cycles of chemotherapy battered and a caricature of my previously athletic self. I was barely able to jog 100m, but I found a brochure at the cancer centre for a 90km fundraising ride and signed up with determination to claw my way back to fitness.
That was 2007, and I’m fortunate that 2016 will be my 10th fundraising ride and 8th Enbridge Ride to Conquer Cancer. With the help of thousands of donors over 9 years, my teams and I have raised over $455,000 for the cancer communities in BC and Alberta.
Riding to conquer cancer has become central to my life. I am convinced we will see a world free from cancer within our lifetime. Why not join this critical movement in support of Albertans facing cancer and their families?
Why Choose Alberta Cancer Foundation?
We are fortunate in Alberta to be able to invest in a foundation where 100% of all funds go directly to support Albertans. To underline the impact that the Alberta Cancer Foundation (ACF) makes in the lives of Albertans facing cancer, here are some of the recent accomplishments and continuing programs supported by our donor dollars.
Dr. Ing Swie Goping and the BAD protein
The ACF supports a breast cancer research program, led by Dr. Ing Swie Goping, that has identified a biomarker that could predict who should receive taxane chemotherapy and who shouldn’t. Taxane chemotherapy is extremely effective in treating some women with breast cancer and not others, but until now we haven’t had a way to know why. If we could save hundreds of Albertans from undergoing this treatment, which can produce harsh side effects, we could relieve unnecessary suffering and begin alternative treatments sooner. This is the promise of Dr. Goping and her team’s research.
Lung Cancer Screening
Lung Cancer is one of the most deadly of cancers. This year alone, 2,000 Albertans are expected to be diagnosed with lung cancer, and sadly 1,700 are expected to die. Early detection presents the greatest opportunity to intervene effectively and save lives, and yet there are no provincial lung cancer screening programs currently in Canada. The ACF is funding a provincial lung cancer screening project that has just started recruiting patients in both Calgary and Edmonton. The goal of the project is to be the first province to implement a screening program to detect the disease early…hopefully before it is too late.
The ACF is unique among cancer foundations…focusing considerable energy on delivering immediate impact on cancer patients and their families through investments in enhanced care at all 17 cancer centres across the province. They provide support to patients, no matter where they are on their journey. From comfortable chemo chairs or blanket warmers to patient financial assistance that ensures that patients who need it receive financial assistance at their time of greatest need. Patient navigators are another of the worthwhile investments that ACF donors support that make the cancer journey easier and outcomes better, mostly for rural Albertans.
These investments simply would not have been possible without the private funding supplied through events like the Enbridge Ride to Conquer Cancer in support of the ACF. You can read about all of these programs and more at http://www.albertacancer.ca.
To quote the Alberta Cancer Foundation website:
We strive to be one of the most innovative, philanthropic organizations in Canada by delivering transformational results for Alberta cancer patients and their families. We strategically invest in research and programs that have a direct line of sight to patients. We are taking a bold, new approach to speed progress and bring results to patients faster.
The people that I have met through fundraising and the Enbridge Ride to Conquer Cancer have become my closest and dearest friends. Our annual 200km bike ride is both moving and enriching. I hope you will join us, and if you do, thank you for making an impact in the lives of Albertans facing cancer and their families.
VANCOUVER, B.C. – Scientists at the BC Cancer Agency and University of British Columbia have identified new breast cancer genes that could change the way the disease is diagnosed and form the basis of next-generation treatments.
Researchers have reclassified the disease into 10 completely new categories based on the genetic fingerprint of a tumour. Many of these genes could offer much-needed insight into breast cancer…